Quick Update

A Quick Update:

Rachel had a rough night - she needed some morphine once to help her breathe more easily. She is barely eating - which is ok, she likely doesn't feel hungry. (20 mls in 12 hours yesterday). This is because her body is transferring any available oxygen to what is vital for life - which right now is breathing.  She has been very lethargic for the most part.  We are focussing on keeping her comfortable.  We don't have reasons to think these are signs of the end.  She may bounce back from this, as she has the previous times.  But her heart does appear to be in a more fragile state again.  

Our plans have changed again for today.  Dave is going to take Ethan to preschool and attend his Christmas 'concert' (15 min) at the end of his class.  He'll probably stop by at home for a few things and try and get some work done.  I am disappointed about missing Ethan's concert - he has some lines to say that he knows perfectly.  But this seems to be the best option right now. We had all planned to go home every day this week while staying here for nights, but we may end up spending more time here.  We'll have to take it  one day at a time again.  We're pretty familiar with what that means already.  

 

I'm still feeling shaky, like I am barely holding things together.  It feels like we're right back on the day when she first had this episode.  It also didn't help that Abigail was waking up with terrible nightmares yesterday.  (and our night was so disrupted) I wouldn't be surprised if our kids are feeling the changes in our home. Thank-you so much for your prayers.  We all need His strength and peace today.