Wow - I received so many responses to my last post - comments, and emails and calls. Thank-you so much! And thank-you for praying. I know there are people praying as well who didn't send notes. I have had only one hand free for most of yesterday and today (Rachel needs alot of care) so I haven't been able to respond to you the way I would like. I'm not that good at one handed typing. But I wanted you to know that I have sensed your prayers and you have deeply encouraged me.
I have loved hearing your stories. Please keep sharing them with me! I may not respond right away but I read everything - sometimes crying, sometimes laughing as I read. What a journey we are all on. Some stories are so similar to our own. These past few days, you have been reminding me of the goodness of God. Your stories reminded me of this verse...
"He who goes out weeping, carrying seeds to sow, will return with songs of JOY, carrying sheaves with him." Psalm 126:6
I am feeling much better emotionally these days. But feeding Rachel is such a full-time job that I still feel exhausted in every way. She is having so much trouble eating. It seems like she is ferociously hungry and yet when I give her milk, she sucks once and pulls away and cries. And then she fusses constantly, probably because she is hungry. (I'm guessing) It has been a battle just getting her to drink 10 mls at a time. Yesterday I posted a note on FB asking you to pray because I just didn't know what to do for her. Perhaps God was responding to your prayers....because in the afternoon, she suddenly drank 75 mls at one time!! This is virtually unheard of for her! It was a wonderful reprieve.
She had a rough night (according to our respite worker) but fed ok. Then today she was having trouble drinking again. She finally gave us some smiles this evening, but they are more rare these days. I miss them. I want to know why eating is so difficult for her...and it is hard sometimes to wait for the answers we want. She doesn't seem to be sick at all and this has been a problem for quite awhile already. Is there anyone (with a child with heart issues) reading this who has faced feeding issues like this?
Thank-you so much for your prayers.