I have good news!! Some relief did come but not in the way we expected! We did some refiguring of our remaining respite hours (from now until August 26) and it is WAY better than David originally thought!! Instead of the 28 nights that we thought we had to do ourselves, we really only have 19. Yeah, neither of us did well in Math. Kind of embarassing but I'm sure glad we were wrong. This is a HUGE relief. We are going to be at the Flames House for 8 days next week (unless we are bumped for others in a more urgent care situation) And in July we are hoping to make another trip to Manitoba - and have help for the nights there - which takes care of another 8 days. The question still remains about what our new contract will be in August, and we will get the final answer on that next week. Yay - I feel SO MUCH BETTER. Thank-you for praying for us.
about more hours through Rotary or Variety, I am pretty sure our social worker said that we didn't fit the criteria for that. I forget the reasons so maybe I'll ask about it again. I wonder if it's the same reason why we don't fit Homecare criteria. (she doesn't need nursing care, dressings etc..) Thanks for the suggestion.
Also, a few of you asked about feeding tubes etc...Basically, all our doctors (and there's alot of them) feel that feeding her orally is still best method for her. It's a really good question though and we have asked it ourselves in the past. I can't write much right now, but I'll try again later....!