Our respite worker kindly recorded Rachel's milk intake last night. 68mls total. (a bit better than last night). We have noticed that Rachel doesn't like to be touched or moved much these days. That's tough - I want to cuddle with her but it doesn't usually work for long. I just talked with our Palliative care doctor this morning and she suggested trying to drop some milk in her mouth with a dropper (as it seems like she is still hungry but can't for some reason keep sucking). We're going to try that for awhile just to see if that helps her to be more comfortable. But it may still be something like the cold or flu and she might not want it anyway.
Dave is taking the kids to the dentist today. Ethan has two cavities and Abigail has one. Yup, we haven't been that diligent with brushing the past year. I guess it could just as easily have happened if we did. But I have delegated Dave to take them because I'm too nervous. Ahh..life feels out of control for us these days. We have been dropping so many balls. So, If you are still waiting for an answer to your invitation or questions or email etc...I'm sorry! I am reading everything and I so appreciate your efforts and thoughtfulness. But we are kind of in survival mode here again and I can't think straight enough to respond right now. Thank-you for your understanding. Some of you have asked how you can help - or given me strict instructions to call if I need anything;) I hope it's ok if I just give a blanket answer. Meals would be the most appreciated right now. (freezable stuff is best) I have a hard time admitting we need help or asking for it (or even knowing what we need half the time!) but this is one more or less constant need. Thank-you:)