From the bottles we gave the respite worker last night, we see that only 70 mls of milk is gone. This means that in a 11 hour period, she only drank this much (and it was probably even less than this bc when rewarming the bottle, the top half often gets partially lost in the sink) She seems so life-less this morning. We miss her smiles, her personality....and I can't help thinking that we won't see much of this again.
About the conversation with the Doctor, the basic gist of it this: It is important to follow Rachel's lead about food. If she doesn't want it, we shouldn't push her. Feeding her at this point might even make her more uncomfortable. I knew all this, but it still came as a bit of a surprise. It was a tough reminder again of where we are heading, where we have always been heading. It's hard too because she seems so unhappy and usually that means she wants to eat. And now it is something else and we don't know what to do for her. There was a bit more to the conversation but I think I'll just leave it there for now. I'm off to the gym this morning but it feels so hard to leave her today..