I just spoke with one of Rachel's palliative care doctors. We're going to increase the concentration of formula to water and hopefully this will help her to feel fuller longer. We are still feeding her roughly every two hours. It would be wonderful if this would give us better nights!
Ethan said something sweet yesterday. He and Abigail had bounded into our room, after having night snack downstairs. They both went over to Rachel, kissed her and stroked her head. Then Ethan said "She makes me want to take care of her forever". Such a good big brother.
Rachel has been fussier today. But I am hoping to get a little nap in yet this afternoon. This cold has really been hanging on. Grandma is with the two older kids at our house - Grandpa and Dave are doing some odds and end jobs at home as well. So it's just me and Rachel hanging out here at the Hospice for a few hours!