Thursday, June 23, 2011
Rachel was in respiratory distress again this morning at 5:30 am. Not really a spell but something was going on. We gave her two doses of fentanyl. I was getting a bit stressed out about the drugs yesterday. I know it's not a big deal but I think I was stressed already because of Rachel and my stress needed a focus. I think I was feeling grumpy (and a bit childish) about our life and how tied to the house I already feel. The drugs usually get delivered in the late afternoon or evening. Yesterday, it was going to come in the evening and we both really wanted to be at Ethan's preschool graduation (pictures coming) So I cancelled the drug run, hoping we wouldn't need it. Now we don't have enough drugs left for a full out spell. Delivery comes in the evening again. It's kind of a trick making sure we always have enough because we never know when she will need them, but we would rather not pay for them if we don't need them. Maybe we will have to increase the number of doses we have on hand. We also have the option of going to get them ourselves, so maybe Dave will have to do that later this morning. But I'm hoping she won't need them before then.