There is SO little time for reflection these days....but I did briefly look back at some old posts to see which day we had moved to the Flames House. I found these words on May 23. "What a couple of days it has been! Full of blessing, full of difficulty, full of tears. Tomorrow we are being transitioned from the Foothills Hospital to an incredible facility for families with terminally ill children - the Rotary/Flames House Pediatric Hospice. We’ll have room for our other kids to live there with us, meals will be made for us, and we expect to spend the rest of Rachel’s days there together as a family."
The other day I was remembering those first days in Hospital - there is one memory that still makes my heart hurt to think of it. It was the walk down the hall to Rachel's first bath. The kids walked so proudly next to their new sister and Ethan told the bystanders (many who were holding their own new babies) that this was his new baby sister. He was so proud. And my heart felt so broken to hear it. But to everyone watching, we were just like any other family walking down the hall. Oh, a child's love for his sibling can be a beautiful thing. (emphasis on 'can be';) )
|Rachel was NOT happy with this car seat idea. And I remember feeling stressed about her crying because she was having some trouble with mucous etc..|
|There's Rachel!! I rode in the ambulance with her for the 10 minute drive. Ethan was offered a ride too but he wanted to go with Grandma instead!|
|Just Drinking her in.....|
And now I say....what a year it has been!!! ok my kids are going wild in the hall........really need to get going!!! We are staying at the Flames House until tomorrow now. We have a Doctor's appointment (with a booked echo) and we will move home after that.