Rachel had another spell tonight. We were just sitting down with the kids for a movie when it happened. I was thankful for another mom that came to sit with Ethan and Abigail, while we took care of her in the main area. (although I heard later that Abigail had politely asked her to go away - yikes - it's kind of scary what comes out of our kids' mouthes! But she took it all in stride.) We had to give Rachel the maximum dose of fentanyl.
If you read this tonight, I would really appreciate your prayers as we prepare for bed. I'm feeling a bit on edge again, wondering how she will be during the night. Thank-you.