Tuesday, April 5, 2011
This afternoon, Dave was going out the door to bring Ethan to his preschool, and I had a feeling that Rachel was having another spell. Her hands felt cold and she had that strange pre-spell cry. But Ethan was so excited about going to the fire hall with his class...and so I didn't stop them. Dave asked if she was ok and I lied and said "yes". And then I ended up having to call his cell a few minutes later to ask them to come back. Abigail was screaming from her bedroom, wanting something or other and I kept yelling at her to wait while I juggled the fentanyl and the phone and watched the timer. I think she sprayed back most of the first syringe in my face because I was in too much of a hurry. I HATE THIS. I hate it that my little girl has to go through this. We gave her four syringes which leaves us one more. We will get more in a few hours when we are back at the House. (we came home for the day) Dave ended up taking Ethan to the fire hall after the spell ended. He'll be late but at least he still made it. So, that's our afternoon. Rachel already slept all morning and now she'll be out again for awhile. I think I'll go lie down next to Rachel for awhile. We really do appreciate your prayers. Thanks.