Rachel had another spell at 4:45 am this morning. It lasted roughly 30 min. The good news is that the fentanyl seemed to act much faster than the morphene. Shortly after the first dose, her face relaxed and lost some of the intensity. (we gave her three doses in total) I so wish it could do even more, although I know that her breathing likely sounds far worse than it really feels for her. I am glad we were at the Flames House for this one. It was nice to have a nurse beside me helping with the syringes - it's a bit more 'fiddly' than the morphene was. This way, I could just focus on holding her. Dave came out to be with us for a several hours this morning. I'm so thankful for our neighbor who came over to watch our kids! Thanks John.
This is the first time she has had two intense spells this close together. I am going home to pick up my family this morning and we are staying one more night. The good news is that I slept a four hour stretch yesterday!! And then surprisingly, I was able to sleep another hour and a half this morning. I feel a heavy sadness again this morning but I am also feeling so much better mentally - more able to function than I did a few days ago.
Rachel is giving out smiles this morning. The area around her eyes is quite red - common for her after spells. But otherwise, she seems fine. I had a good snuggle with her this morning.
Last night as I brought her out to the nurses, she was asleep in my arms with her little fists up by her face and she looked so much she did in her 3D ultrasound pictures....