"He shall feed his flock like a shepherd: he shall gather the lambs with his arm,
and carry them close to his heart, and shall gently lead those that are with young." Isaiah 40:11

Wednesday, December 1, 2010


We took Rachel in for her RSV immunization today.  It's in the community earlier than expected so her apointment got bumped up three weeks.  This cold strain is especially hard on heart babies - they already have airways that are comprimised. If they get the virus, they are often the first to be hospitalized and need oxygen etc... The nurses were from Children's Hospital - they are used to doing really tiny preemie babes.. I admit, I was a bit nervous about it, because of the 'breathing spell' she recently had. I was worried that crying would set off another spell. But we want to protect her from going through RSV, if we can.  (which could be lethal for her) And she really did cry hard - for a good 10 minutes after the shot.  We were so glad when she settled. The only thing that finally worked was a dab of tylonol on her soother.  She loves that.  She was very content all day but rarely slept.  This is turning into a pattern, little girl.. 

Dave's parents leave early tomorrow for Manitoba.  It was so wonderful to have them here.  It was good to be busy - and it pushed the anxiety aside.  We may be heading in to the Flames House this weekend for a few nights.  We went over the respite hours allocated to us for last month so we are hoping to utilize them a little more this month.  I think we will be celebrating a little girl's birthday there this weekend - she is turning 4.  She has had alot of difficulties lately and their family is on our mind alot these days. 

Thank-you for your prayers. I do believe that God is giving peace..


fawne said...

how special for you to get to celebrate christmas with your little angel. i know this road has been tremendously hard but i'm delighted that God has given you so much time with rachel. i believe you will realize the fullness of that blessing later and be thankful in a new way.
we continue to pray that you will see the Father's hand through the pain. love to you and prayers always.

Janet said...

How wonderful it must of been to have Dave;s parents there.
Thank you for sharing all the pictures.They are beautiful.
As I read your updates I see how God's hand has moved in many ways.Isn't HE awesome...
There is not a day we don't think of you all.We love you & are praying daily.
Much love & Prayers
Janet M

Brenda Funk said...

It was so good to be there with you all! Praying constantly as we see the challenges in your daily lives these days....praying for peace, strength and even that you may be suprised by joy (as C.S.Lewis said) from time to time. I am so impressed with the way you are pulling together and handling each day!

Anonymous said...

Sweet baby Rachal Amariah,
You don't know me, but I feel I know you a little from reading your mommy's blog, and hearing your grandma Brenda talk about you. I also work with your auntie Val at the hospital and she too tells me about you. I have learned what a special, precious, little baby you are. I love babies very much. I used to work in maternity with the mommies and babies. I always have had that special interest in babies, because they are such a blessing from God. You are a very special baby, because you have to work so hard for everything you do. You are so brave and fight so strongly to live. I just want to cheer you on. Your little hand in your Grandpa's big hand is so beautiful. You touch so many lives and you are so loved. You are very special and you are a good fighter for life.
Elda Plett

Anonymous said...

Hello, You don't know me, I stumbled onto your blogsite through the photograher who took pictures for you. I have spent the last couple hours reading through many of your blog posts. Your life and experiences with Rachal are very moving, and I found myself crying along with the stuggles you have experienced. My husband and I are currently trying for our first child, and it has been a struggle to even get pregnant. I wanted to tell you I am praying for you and your family. I'm a big beleiver that God puts things in our life for a reason. I can feel the love you have for Rachal and hope she stays with you for a long as God has planned. Thank you so much for posting your experiences, I can't imagine putting such intense feelings into words can be easy. May god contiune to bless your family and your time with Rachal!