This morning at 5:45 am our respite worker brought Rachel upstairs to us. She was in distress again. We held her and gave her some morphine. It was not as traumatic as the last times because she was not blue, but it still is so difficult to watch her breathe so hard and fast. We had a feeling yesterday that something was coming because she seemed so much weaker and so I slept very lightly all night waiting for it. Our poor respite worker didn't sleep much either because we told her about our nervousness.
Rachel is conked out now. The other two are just waking up....Another day.