Not much new to report...Rachel was weighed this afternoon. But I was taking a nap at the time and Dave doesn't remember how much she weighed:) He says something just above 4 pounds so she's lost some which is normal. She's still drinking enough milk to stay hydrated which is good.
Rachel is doing much better than we thought she would be, even from a few days ago. So much so, that we are considering the possibility of taking her home! (We are welcome to return here when we need) However we've decided not to think about it this weekend and then revisit the question next week. Her heart appears to be compensating amazingly well despite all the abnormalities. We've passed the one week mark today!! Her life will still be short, yet it looks like we will have much more time with her than we thought.
We are so spoiled here. Meals made for us, our rooms cleaned every day, someone is reading the kids stories right now, the nurses take care of Rachel all night for us! It has been a haven of sorts..and going home will hold some challenges. But we will take it a day at a time...
We've been amazed at how many of the nurses, doctors, and various other care personel share our faith!! They have prayed with us and given hugs just when we needed them. Thank-you God for these beautiful, faithful people.