She is so beautiful...she has facial expressions like her brother Ethan, she has a blue vein between her eyes like Abigail, lots of dark hair, perfect little hands and feet...and each hour we get closer to saying good-bye, we fall more in love with her...she's opened her eyes for us several times today...here's a picture of one of those rare moments. We seize those moments, treasure them in a way we didn't (and couldn't) with our first two.
For the most part, she is very relaxed and she has color in her face. We can almost forget. Things were different from the start, she wasn't able to nurse and she was having some issues with mucus but this morning reality hit for us. We have had to suction mucus from her passageways much more often today so that she can breathe and is comfortable. This is really scary and we are glad to be in a place where we have so much support. (this is related to her condition and not bc she is a c/section babe) We have also stopped trying to feed her formula and have switched to giving her a little glucose water instead, a bit at a time so see if that will help with the mucus. The nursery staff have modified a soother just for her and hopefully that will help her work the mucus down (her swallowing reflex doesn't seem to be working). It is a natural instinct to want to feed our daughter but right now the aim is comfort. Because of the events of today, our Palliative Care Doctor feels that our time with her will be shorter than what we were told when she was first born.
As for me (kendra), recovery has gone really well! I am so thankful for that! We have also been blessed with amazing nurses, doctors, etc...there's so much i want to write but there will be time one day for all of that...thank-you for praying.