End to the Weekend

I didn't want to include this in the last post.  But our weekend did end on a sad note.  Just as we were finishing up some of our goodbyes with people at the conference, Rachel had a spell.  I had thought for a bit that she seemed bluish during the last main session but the spell came on very suddenly.  We gave her three doses and almost gave her the fourth.  So, thankfully it wasn't the worst kind of spell.  This time my parents were able to see the tail end of it.  With all the spells she has had, they have never seen one yet.  And it does help them to have an idea of what we go through with her.  Rachel slept alot last night and hasn't eaten much today yet.  She went a long stretch between 3:15am and 8:30am without eating.  I think that's why her smiles are so precious to us today.  

We are enjoying our last full day at the Flames House.  We have plans for another date tonight and we will move home after lunch tomorrow.