Next Year's Contract

Today is the Rachel's third really good day! Her feeds are better.  She has even done a few 45 minute stretches before we had to feed her.  She is having good naps and she is more content.  She is holding her head.  We are all really enjoying her.  The break from the constant feeds is so nice. (ha! less constant)

We had a meeting with our case worker this afternoon to discuss next year's contract.  (beginning August 26) Yeah, amazing right?  The last time she was in our house, we thought this respite thing would just be temporary and now, months later, we are asking for more hours.  Overall, we felt good about the meeting.  We have a very understanding case worker and we were very glad that we had charted a typical day and night for Rachel.  The kind of sad news was that we already have the maximum amount of hours they usually give families.  (and we weren't aware of that) But she said that we should first find out if we are covered for Home Care.  If not, we can go back to her and she will work to get us some more hours.  (starting before Aug.26) In this case, it is very unlikely that we would get the amount we want.  But if we can get both Home Care and FSCD hours, we might.  Rachel is an unusual case though and we're not sure if she will fit the criteria for home care.  We'll find out next week...