Rachel had another spell at 12:30 am last night. It was an average one, as spells go. Three doses of fentanyl. But still stressful. That first minute or so feels like forever, when I can't seem to get the drugs ready and into her, fast enough. But, amazingly, Rachel is happy this morning. So glad she doesn't have the kind of memory recall that we do!
And no, there is no faster method for her body to absorb this drug. It's just that the spells come on so fast and it takes a bit to wake up ourselves up, fingers are fumbling etc...but I'm sure it feels a ton slower than it actually is!
Kendra, is there another way to get the Fentanyl to her that's faster and therefore less stressful for you guys. (I have seen that they come in "patches" that go on the skin--but not sure if there's a pediatric dose for that?
ReplyDeletepraying for you guys.