How is Rachel? Well, she still has very little energy. She is still eating only small amounts at a time and generally not happy. Weak bottle sucking. Her fontanel is quite sunken and she isn't peeing. She isn't moving much. It is very hard for us to see her like this and we worry for her. Is she getting worse?? Maybe. There are signs of this being the end but we have been here before and so it is still hard to say. I had a conversation with a doctor that I want to write about but I will save it for another day. I'm having some trouble sleeping again. I keep waking up at 3am, and other times I jolt awake feeling panicked that something is happening with Rachel. The good news though is that Dave is on holidays this week and we hope to do some relaxing and re-connecting! Also, because of our extended stay at the FH, we can have in-house respite ALL WEEK!! This is a big deal, especially with Rachel not doing well right now. Thank-you so much for your prayers for us. Good-night!
(added later....)
This is going to be the last page of my first blog book of Rachel's story!! I want to end with a verse that has carried me through the ups and downs of the last year and a half.
I WOULD HAVE DESPAIRED........UNLESS...... I had BELIEVED that I would see the GOODNESS of the LORD in the land of the living. Wait for the LORD; be strong and let your heart take COURAGE; Yes, WAIT for the LORD! (Ps. 27:13.14)
A year and a half ago, we shared with our church the grim news that the baby I was carrying, had alot of problems, and that she would likely not live long after birth. And now here we are - celebrating her birthday! What a year it has been! In many ways, it has been a very difficult year. Full of tears and exhaustion. But there have been signs of God's goodness to us too. And there has been alot of beauty. A year and a half ago, I could not have seen how true God's words would be, in our own situation. We were in the dark but we chose to believe God anyway. We chose to believe that God would bring beauty and good out of our situation if we would trust Him. We chose to wait to see what He would do. And God was true to His Word. And so we will continue to wait and to believe that we will see His goodness yet again, even in the hard days that are yet to come.
We will WAIT for the LORD.....we will wait and we will put our TRUST in HIM. Because only HE can make anything new! Only GOD can bring BEAUTY from ashes.
4 comments:
tonight i was at the U2 concert and prayed for you while they sang "Walk On" It's my song to you today. love you.
I woke up last night at 3:45am and couldn't sleep so I spent some time praying for you guys - may you feel held by God today. Love you.
Praying...wishing soooo much I could be closer to put my arms around you, play with the kids, hold and walk and rock little Rachel. This is so hard to read about.
My prayers for the Funk family today, especially for Rachel that she will not be in pain. I pray for the heaviness of your hearts to allow the the Lord to uphold you in his loving arms. We don't know what to say at this extremely difficult time. Kendra you have been such a honest open book. You do not realize what you have done for many of us in our walk of faith. You are a true honest Christian and may the good Lord Bless you richly.
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