I just spoke with one of Rachel's palliative care doctors. We're going to increase the concentration of formula to water and hopefully this will help her to feel fuller longer. We are still feeding her roughly every two hours. It would be wonderful if this would give us better nights!
Ethan said something sweet yesterday. He and Abigail had bounded into our room, after having night snack downstairs. They both went over to Rachel, kissed her and stroked her head. Then Ethan said "She makes me want to take care of her forever". Such a good big brother.
Rachel has been fussier today. But I am hoping to get a little nap in yet this afternoon. This cold has really been hanging on. Grandma is with the two older kids at our house - Grandpa and Dave are doing some odds and end jobs at home as well. So it's just me and Rachel hanging out here at the Hospice for a few hours!
I am humbled at your faith and encouraged to look at life's challenges in a different way. Thank you for being transparent with your journey through the wastelands...what a great passage! You are close to our hearts and prayers...love you!
ReplyDeleteAunt Brenda
kendra, i do hope you are able to get longer stretches of sleep at night soon!!! think of me when you are up feeding rachel - chances are high i am also up feeding simon . . . he too seems to insist on eating every two hours (sometimes less) during the night. i could make him 'cry it out' as i know he gets good nourishment during the day - and i think he wants to cuddle more than anything - , but my heart tells me to enjoy those night feeds (difficult as they often are) because i know that when they are finally over forever, i will look back and mourn their loss. i will pray for you as you come to mind while i lie awake feeding a baby.
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