Not much new to report...Rachel was weighed this afternoon. But I was taking a nap at the time and Dave doesn't remember how much she weighed:) He says something just above 4 pounds so she's lost some which is normal. She's still drinking enough milk to stay hydrated which is good.
Rachel is doing much better than we thought she would be, even from a few days ago. So much so, that we are considering the possibility of taking her home! (We are welcome to return here when we need) However we've decided not to think about it this weekend and then revisit the question next week. Her heart appears to be compensating amazingly well despite all the abnormalities. We've passed the one week mark today!! Her life will still be short, yet it looks like we will have much more time with her than we thought.
We are so spoiled here. Meals made for us, our rooms cleaned every day, someone is reading the kids stories right now, the nurses take care of Rachel all night for us! It has been a haven of sorts..and going home will hold some challenges. But we will take it a day at a time...
We've been amazed at how many of the nurses, doctors, and various other care personel share our faith!! They have prayed with us and given hugs just when we needed them. Thank-you God for these beautiful, faithful people.
9 comments:
I'm so thankful God has provided this wonderful support for your family!
I think about you every day and am so amazed at your journey with Rachel.
On another note, why on earth would you leave somewhere that cooks your meals and lets you sleep? Miss talking to you!
I woke up dreaming about you guys. Just to let you know that I pray for you all always. I was singing Jesus loves me to Rachel while I did dishes yesterday. Love you guys.
I have always loved the simple child like song 'Jesus Loves Me'!!! And now...Jesus LOVES you all so much & his loving arms are surrounding you, ALL his children. Praying for you!!! HE IS STRONG!!!!
Cheryl (neighbor)
awww i miss you guys! can you post a picture of the dress? i'd love to see it.
We are so glad to hear that Rachel is doing better than expected and that you are feeling such support in the home. That's what you guys need right now. Keeping you all in our prayers.
Sounds like a wonderful place! So glad that your family is able to spend some time there. Prayers for wisdom regarding when to return to your home, and for that transition, when it comes.
Keep posting those pictures! We wish we could give you guys great big hugs! When we see you again we will!! It sounds like you are in a wonderful place, that is so good!
Much love !!! She is beautiful!!!
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